Cuidar os Pais no Cancro Infantil: a Percepção da Equipe
DOI:
https://doi.org/10.31877/on.2009.10.01Palavras-chave:
Oncologia Pediátrica, Pais, Cuidadores, Profissionais de SaúdeResumo
Trata-se de uma revisão sobre a percepção da equipa de saúde que cuida dos pais de crianças oncológicas. Pesquisou-se em bancos de dados nacionais e internacionais, no período de 1995 a 2008, onde se encontraram apenas dois estudos que abordavam a visão do profissional sobre este tema. Apesar de evidenciarmos um avanço no estudo de pais de crianças com cancro e suas necessidades, percebemos a escassez de estudos que promovam a auto-avaliação crítica da conduta profissional e a falta de foco na intervenção junto a estes cuidadores.
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Referências
Rezende, V., Derchain, S. & Botega, N. (2006) O impacto do cancro em cuidadores informais. Boletim Eletrônico SBPO, retirado em 06/03/2006, http: //www.virtuotech. com.br/sbpo.
Manne, S. (2005) Our invisible patients. Journal of Clinical Oncology, 23(30), 7375-7377.
Last, B. & Grootenhuis, M. (1998) Emotions, coping and the need for support in families of children with cancer: a model for psychosocial care. Patient &ducation and Counceling, 33, 167-179.
Romaniuk, D. & Kristjanson, L. (1995) The parent-nurse relationship from the perspective of parents of children with cancer. Journal of Pediatric Oncology Nursing, 12 (2), 80-89.
HoeKstra-Weebers, J., Jaspers, J., Kamps, W. & Klip, E. (2001) Psychological adaptation and social support of parents of pediatric cancer patients: a prospective langitudial study. Journal of Pediatric Psychology, 26 (4), 225-235.
Sterken, D. (1996) Uncertainty and coping in fathers of children with cancer. Journal of Pediatric Onchology Nursing, 13 (2), 81-88.
Chesler, M. A. & Parry, C. (2001) Gender roles and/or styles in crisis: an integrative analysis of the experiences of fathers of children with cancer. Qualitative Health Research, 11 (3), 363-384.
Howlett, N. & Casey, L. (1995) Comentary: the parent-nurse relationship from the perspective of parents of children with cancer, Journal of Pediatric Oncology Nursing, 12 (2), 90-92.
Hughes, P. & Lieberman, S. (1990) Trobled parents: vulnerability and stress in childhood cancer. British Journal of Medical Psychology, 63, 53-64.
Santacroce, S. (2002). Uncertainty, anxiety, and symptoms of posttraumatic stress in parents of children recently diagnosed with cancer. Journal of Pediatric Oncology Nursing, 19 (3), 104-111.
Dixon-Woods, M. & Young, B. e Heney, D. (2002) Childhood cancer and users` view: a critical prespective. European Journal of Cancer Care, 11, 173-177.
Enskär, K., Carlsson, M., Golsäter, M., Hemrin, E. & Kreoger, A. (1997) Parental reports of changes and challenges that results from parenting a child with cancer. Journal of Pediatric Oncology Nursing, 14 (3), 156-163.
Arrais, A. & Araújo, T. C. F. A. (2000) Recidiva X Cura: a vivência paradoxal da sobrevivência ao cancro na infância. Revista Brasileira de Cancerologia, 45 (3), 9-19.
Kazac, A., Boeving, C., Alderfer, M., Huang, W. &Reilly,A. (2005) Psttraumatic stress symptoms during treatment in parents of children with cancer. Journal of Clinical Onchology, 23(30), 7405-7410.
Sloper, P. (2000) Predictors of distress in Parents of children with cancer: a prospective study. Journal of Pediatric Psychology, 25 (2), 79-91.
Young, B., Dixon-Woods, M., Findlay, M. & Heney, D. (2002) Parenting in a crisis: conceptualizing mothers of children with cancer. Social Science e Medicine, 55, 1835-1847.
Norberg, A., Lindblad, F. & Boman, K. (2005) Coping strategies in parents of children with cancer. Social Science e Medicine, 60, 965-975.
Steele, R., Dreyer, M. & Phipps, S. (2004) Patterns of maternal distress among children with cancer and their association with child emotional and somatic distress. Journal of Pediatric Psychology, 29 (7), 507-517.
Elkin, T. D., Jensen, S. A., McNeil, L., Gilbert, M. E., Pullen, J., & McComb, L. (2007). Religiosity and coping in mothers of children diagnosed with cancer: an exploratory analysis. Journal of Pediatric Oncology Nursing, 24 (5), 274-278.
Kohlsdorf, M. & Costa Junior, A L. (2008). Estratégias de enfrentamento de pais de crianças em tratamento de câncer. Estud. psicol. (Campinas) vol. 25, n.º 3.
Grootenhuis, M. A. & Last, B. F. (1997) Adjustment and coping by parents of children with cancer: a review of the literature. Support Care Cancer, 5, 466-484.
Delella, L. A. (2001). Sobrevivência de cancro na infância: uma investigação sobre a avaliação da desordem do estresse pós-traumático (PTSD) e as relações familiares.Dissertação de Mestrado. Universidade de Brasília, Brasília.
Best, M., Streisand, R., Catania, L., & Kazak, A. E. (2001). Parental distress during pediatric leukemia and posttraumatic stress symptoms (PTSS) after treatment ends. Journal of Pediatric Psychology, 26 (5), 299-307
Phipps, S., Larson, S., Long, A., & Rai, S. N. (2006). Adaptative style and symptoms of posttraumatic stress in children with cancer and their parents. Journal of Pediatric Psychology, 31 (3), 298-309.
Brody. A. C., & Simmons, L. A. (2007). Family resiliency during childhood cancer: the father’s perspective. Journal of Pediatric Oncology Nursing, 24 (3), 152-165.
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Direitos de Autor (c) 2023 Camila Gabriela Falconer, Alessandra da Rocha Arrais
Este trabalho encontra-se publicado com a Licença Internacional Creative Commons Atribuição-NãoComercial-CompartilhaIgual 4.0.