Experiences of People with Hepatobiliopancreatic Cancer: a phenomenological study in a tertiary hospital
DOI:
https://doi.org/10.31877/on.2026.53.01Keywords:
Qualitative Research, Palliative Care, Health Literacy, Decision Making, Digestive System NeoplasmsAbstract
Introduction: Hepatobiliopancreatic cancer (HBPC) has a poor prognosis, placing the individual in a potential end-of-life situation.
Objective: To understand the experiences of individuals with HBPC, their involvement in therapeutic decision-making, and their relationship with healthcare professionals.
Methods: A phenomenological study was conducted with individuals diagnosed with HBPC, using semi-structured interviews analyzed according to Van Manen’s methodology.
Results: Four main categories emerged: "facing the diagnosis," "therapeutic decision-making process," "relationship with healthcare professionals," and "life purpose and meaning." Participants reported a significant emotional impact following the diagnosis and generally entrusted therapeutic decisions to healthcare professionals. Relationships with professionals were described as positive. A redefinition of priorities, expectations, and family relationships was also observed.
Conclusion: The experiences of individuals with HBPC are emotionally intense and challenging, highlighting the need for an individualized approach, early integration of palliative care, and strategies to enhance communication and health literacy.
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Copyright (c) 2026 Ana Rita Loureiro, Anabela Rodrigues, Linda Fernandes, Fernando Sousa, Maria do Céu Nunes, Carmen Nogueira
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