Young adults with cancer in palliative care/end of life care: integrative literature review

Authors

DOI:

https://doi.org/10.31877/on.2025.51.02

Keywords:

Young adult, Cancer, Palliative care, End of life care

Abstract

Introduction: Young adults with cancer in palliative care and/or end of life care are a particularly vulnerable population, about which very little has been studied. The main goal of this review is to summarize their experience.

Methods: An integrative literature review was conducted in the databases PUBMED®, CINAHL Complete®, MEDLINE Complete® and Scielo® (studies published between January 1st 2017 and January 19th 2024). The review was done following the Joanna Briggs Institute guidelines and PRISMA flowchart.

Results: Five articles of various methodologies were included. Among them, a few key themes come to light such: care preferences; negative aspects of the experience; their needs; the familial and social context; and the nurse’s intervention.

Conclusion: This is a context of extreme vulnerability, that requires the intervention of a multidisciplinary team. Therefore, it is necessary to support and enable health care professionals to adopt better practices. This remains a subject that requires deeper research.

 

 

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References

1. Avery J, Geist A, D’Agostino NM, Kawaguchi SK, Mahtani R, Mazzotta P, et al. “It’s More Difficult…”: Clinicians’ Experience Providing Palliative Care to Adolescents and Young Adults Diagnosed With Advanced Cancer. JCO Oncology Practice. 2019 Nov 25;16(1):100–8.

2. Knox MK, Hales S, Nissim R, Jung J, Lo C, Zimmermann C, et al. Lost and stranded: the experience of younger adults with advanced cancer. Support Care Cancer. 2016 Sep 27;25(2):399–407.

3. Batzler YN, Schallenburger M, Schwartz J, Marazia C, Neukirchen M. The General Public and Young Adults’ Knowledge and Perception of Palliative Care: A Systematic Review. Healthcare. 2024 May 7;12(10):957–7.

4. Gaertner J, Knies A, Nauck F, Voltz R, Becker G, Alt-Epping B. “Curative” treatments and palliative care: the lack of consensus. Current Opinion in Oncology. 2014 Jul 1;26(4):380–4.

5. NHS. What end of life care involves. NHS. 2022. Available from: https://www.nhs.uk/conditions/end-of-life-care/what-it-involves-and-when-it-starts/

6. Sansom-Daly UM, Wakefield CE, Patterson P, Cohn RJ, Rosenberg AR, Wiener L, et al. End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice. J Adolesc Young Adult Oncol. 2020 Apr 1;9(2):157–65.

7. JAYAO. What Should the Age Range Be for AYA Oncology? J Adolesc Young Adult Oncol. 2011 Mar;1(1):3–10.

8. Avery J, Mosher PJ, Kassam A, Srikanthan A, Zimmermann C, Castaldo Y, et al. Young Adult Experience in an Outpatient Interdisciplinary Palliative. Care Cancer Clinic. 2020.

9. Burgers VWG, van den Bent MJ, Darlington ASE, Gualthérie van Weezel AE, Compter A, Tromp JM, et al. A qualitative study on the challenges health care professionals face when caring for adolescents and young adults with an uncertain and/or poor cancer prognosis. ESMO Open. 2022 Jun 1;7(3).

10. Ngwenya N, Kenten C, Jones L, Gibson F, Pearce S, Flatley M, Hough R, Stirling LC, Taylor RM, Wong G, Whelan J. Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis. J Adolesc Young Adult Oncol. 2017 Jun;6(2):200-212.

11. Emerson ND, Tabuenca K, Bursch B. End-of-Life Care in Patients with Cancer 16-24 Years of Age. Curr Oncol Rep. 2022 Feb;24(2):195-202.

12. Dhollande S, Taylor A, Meyer S, Scott M. Conducting integrative reviews: a guide for novice nursing researchers. Journal of Research in Nursing. 2021 Aug 1;26(5):427–38.

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Published

2025-07-09

How to Cite

1.
Filipe Penim S, Sousa D. Young adults with cancer in palliative care/end of life care: integrative literature review. Onco.News [Internet]. 2025 Jul. 9 [cited 2025 Jul. 12];(51):e0284. Available from: https://onco.news/index.php/journal/article/view/284

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