Significant Relational Experiences Associated with Caring of Adolescents with Oncological Disease in the Post-Diagnosis
Keywords:
Pediatric Nursing, Oncology Nursing, Adolescent, Diagnosis, Life Change EventsAbstract
Significant care relational experiences arise in the interaction of adolescents with the different people they interact with ending up mediating their own experience of the oncological disease. Thus, the study aimed to: Understand the significant relational experiences of adolescents with hemato-oncological disease, associated with caring, in the diagnostic phase. An empirical investigation of qualitative type, with an interpretative phenomenological nature (Giorgi’s procedural method). Nine Portuguese adolescents undergoing cancer treatment were interviewed.
From the essential structure of the experiences, obtained in an inductive way, there are 4 experiential dimensions: Relating to hospital staff; Maintaining relationship with friends; Valuing family support; and Valuing relationships with other people.
In the nurse-adolescent care relationships, this values: proximity, nurses’ involvement in the care provided, support, good mood; availability to dialogue; and encouragement to face and overcome the disease.
Nurses should encourage adolescents to share emotions and expectations, with a view to progressively and proactively integrate the disease, without neglecting individual specificities in their experiences.
Downloads
Full-text of the article is available for this locale: Português (Portugal).
References
Alahmad, G. (2018). Informed consent in pediatric oncology: a systematic review of qualitative literature. Cancer Control: Journal Of The Moffitt Cancer Center, 25(1). doi.org/10.1177/1073274818773720.
Azevedo, A. (2010). Processo de transição do Adolescente hospitalizado numa unidade de Adolescentes. Dissertação de Mestrado em Ciências da Enfermagem, Instituto de Ciências Biomédicas de Abel Salazar da Universidade do Porto, Porto, Portugal.
Chien, C., Chang, Y., & Huang, X. (2018). The lived experiences of adolescents with cancer: A phenomenological study. Clinical Nursing Research, 6, 1054773818799226. Recuperado de doi.org/10.1177/1054773818799226.
Direção Geral de Saúde (2018). Saúde infantil e juvenilPortugal. Lisboa: Ministério da Saúde. Consultada em http://rotass.cnis.pt/wp-content/uploads/2019/01/aqui.pdf.
Figueira, S. M. M., & Gameiro, M. G. H. (2020). Experiences of adolescents with cancer and blood diseases at the time of diagnosis: a phenomenological study. Revista de Enfermagem Referência, 5(4), e20058. Recuperado de doi:10.12707/RV20058.
Gameiro. M. (2012). Adaptação dos adolescentes com cancro na fase de tratamento: uma revisão da literatura. Revista de Enfermagem Referência, (8),135-146.
Giorgi, A., & Sousa, D. (2010). Método Fenomenológico de investigação em Psicologia. Fim de Século Edições. Lisboa: Fim de século.
Instituto Nacional de Estatística, (2018). Anuário Estatístico de Portugal 2017. Lisboa: Instituto Nacional de Estatística, IP. Consultada em maio, 2018, em https://www.ine.pt/xurl/pub/320469310.
Melo, A., Caires, S., Machado, M., & Pimenta, R. (2013). Pediatria oncológica: o olhar dos profissionais hospitalares em torno das vivências das crianças, adolescentes e seus pais. Indagatio Didactica, 5(2), 262-272.
National Breast and Ovarian Cancer Centre (2008). Breaking bad news: Evidence from the literature and recommended steps, 2007. National Breast and Ovarian Cancer Centre: Surry Hills, NSW, Australia.
Ordem dos Enfermeiros (2011). Guias Orientadores de boa prática em enfermagem de Saúde infantil e pediátrica - Vol I. e Vol. II. (Cadernos OE). Lisboa: Autor.
Roreno. (2016). Registo Oncológico Nacional 2010. Instituto Português de Oncologia do Porto Francisco Gentil - EPE, ed. Porto. Consultada em maio, 2018, em https://www.ipoporto.pt/dev/wp-content/uploads/2013/03/ro_nacional_2010.pdf.
Sisk, B. A., Canavera, K., Sharma, A., Baker, J. N., & Johnson, L. M. (2019). Ethical issues in the care of adolescent and young adult oncology patients. Pediatric Blood & Cancer, 66(5), e27608. doi.org/10.1002/pbc.27608.
Szalda, D., Sullivan, J., Pultman, S., Schwartz, L., & Barakat, L. (2015). Improving the care of Adolescent and Young Adults (AYA) oncology: Educational programming for pediatric oncology nurses. Journal of Adolescent Health, 56, S42-3. doi.org/10.1016/j.jadohealth.2014.10.086.
World Health Organization (2018). Strategic Guidance on Accelerating Actions for Adolescent Health in South-East Asia Region (2018–2022). WHO Library Cataloguing-in-Publication data. ISBN: 978-92-9022-647-5. Consultada em maio, 2018, em http://www.searo.who.int/entity/child_adolescent/topics/adolescent_health/978-92-9022-647-5.pdf?ua=1.
Published
How to Cite
Issue
Section
License
Copyright (c) 2021 Sónia M. M. Figueira, Manuel Gomes Gameiro
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.