"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
DOI:
https://doi.org/10.31877/on.2013.24.04Keywords:
children’s conceptions of health and illness, chronic disease, malignant diseaseAbstract
This study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma
and diabetes, assuming that these diseases and their treatments involve distinct experiences.
Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%).
Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease.
Downloads
References
Bibace, R., & Walsh, M.E. (1980). Development of children´s concepts of illness, Pediatrics,66, 912-917.
Boruchovitch, E., & Mednick, B. R. (1997). Cross-cultural differences in children´s concepts of health and illness. Revista Saúde Pública, 31, 448-456.
Boruchovitch, E., & Mednick, B., R. (2002). The meaning of health and illness: some considerations for health psychology. Psico-USF, 7(2), 175-183.
Bradding, A., & Horstman, M. (1999). Using the write and draw technique with children. European Journal of Oncology Nursing, 3(3), 170-175. doi: 10.1016/S1462-3889(99)80801-1
Carey, S. (1985). Conceptual Changes in childhood. Cambridge, MA: M.I.T. Press
Crisp, J., Ungerer, J., & Goodnow J. (1996).The impact of experience on children’s understanding of illness. Journal of Pediatric Psychology, 21, 57-72
Goldman, S. L., Granger, J., Whitney-Saltiel, D., & Rodin, J. (1991). Children’s representations of “everyday” aspects of health and illness. Journal of Pediatric Psychology, 16(6), 747-766.
Haller, D., Sanci, L., Sawyer, S. & Patton, G. (2008). Do Young People’s Illness Beliefs Affect Health Care? A Systematic Review. Journal of Adolescent Health. 42, 436-449.
Hansdottir, I., & Malcarne, V. L. (1998). Concepts of illness in Iceland Children. Journal of Pediatric Psychology, 23(3), 187-195.
Koopman, H., Baars, R., Chaplin, J., & Zwinderman, K. (2004). Illness through the eyes of the child: the development of
children´s understanding of the causes of illness. Patient Education and Counseling, 55,363-370.
Leventhal, H., Leventhal, E., & Cameron, L.D. (2001). Representations, procedures, and affect in illness self-regulation: A perceptual-cognitive approach. In A. Baum, T. Revenson, & J. Singer (Eds), Handbook of Health Psychology (pp. 19-48). New York: Erlbaum.
Lima, L. & Lemos, M.S. (2008). Concepções Infantis sobre Saúde e Doença. Psicologia: Saúde & Doenças, 1, 196.
Lima, L. Lemos, M.L., & Lema, B. (2010). Concepções de saúde e de doença: Estudo comparativo entre crianças saudáveis e com doença oncológica. In I. Leal, J. Pais Ribeiro, M. Marques, & F.Pimenta, (Edts.) Actas do 8º Congresso Nacional de Psicologia da Saúde: Saúde, sexualidade e género. (pp.455-463). Lisboa: Instituto Superior de Psicologia Aplicada
Lima, L., Guerra, M. & Lemos, M. (2010). Perfis de adaptação psicológica na criança com asma., Psychologica, 2: 79 - 98.
McFadden, E.R. (2002). Asma. In E. Braunwald, A. Fauci, D.L.
Kasper, S.L. Hauser, D.L. Longo, J.L. Jameson (Eds), Harrison: Medicina Interna. (pp. 1539-1546). Rio de Janeiro: McGraw Hill Interamericana do Brasil.
Myant K. A., & Williams J. M. (2005). Children’s concepts of health an illness: understanding of contagious illness, non-contagious illness and injuries. Journal of Health Psychology. 10(6) 805-819.
Paterson, J., Moss-Morris, R., & Butler, S. (1999).The Effect of Illness Experience and Demographic Factors on Children’s Illness Representations. Psychology and Health, 14, 117-129.
Piko, B. F., & Bak, J. (2006). Children’s perceptions of health and illness: images and lay concepts in preadolescence, Health Education Research.21(5), 643-653.
Rubovits, D.S., & Siegel, A.W. (1994). Developing conceptions of chronic disease: A comparison of disease experience. Children’s Health Care, 23, 267-285
Ruland, C., Hamilton, G., & Schjodt-Osmo, B. (2009). The Complexity of Symptoms and Problems Experienced in Children with Cancer: A Review of Literature. Journal of pain and Symptom Management, 37 (3), 403-418.
Rushforth, H. (1999). Practitioner Review: Communicating with hospitalized children: review and application of research pertaining to children´s understanding of health and illness, Journal of Child Psychology and Psychiatry, 40(5), 683-691.
Silva, I. (2010). Psicologia da Diabetes. Lisboa: Placebo Editora.
Williams, T., Wetton, N., & Moon, A. (1989). A Way In: Five Key Areas of Health Education. London: HEA.
Downloads
Published
How to Cite
Issue
Section
License
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.