Vivências da Pessoa com Cancro Hepatobiliopancreático: um estudo fenomenológico num hospital central

Autores

DOI:

https://doi.org/10.31877/on.2026.53.01

Palavras-chave:

Pesquisa Qualitativa, Cuidados Paliativos, Literacia em Saúde, Tomada de Decisão, Neoplasias do sistema digestivo

Resumo

Introdução: O cancro hepatobiliopancreático (CHBP) tem um prognóstico reservado, colocando a pessoa em potencial situação de fim de vida.

Objetivo: Compreender as vivências da pessoa com CHBP, o envolvimento na decisão terapêutica e a relação com os profissionais de saúde.

Métodos: Estudo fenomenológico com pessoas com CHBP, através de entrevistas semi-estruturadas, que foram analisadas segundo Van Manen.

Resultados: Emergiram quatro categorias principais: “confronto com o diagnóstico”, “processo de decisão terapêutica”, “relação com os profissionais” e “propósito e sentido de vida”. As pessoas relataram forte impacto emocional após o diagnóstico, confiando geralmente nos profissionais para a decisão terapêutica. As relações com os profissionais foram descritas como positivas. Verificou-se uma redefinição de prioridades, expectativas e relações familiares.

Conclusão: As vivências são intensas e desafiantes, exigindo uma abordagem individualizada, com integração precoce de cuidados paliativos e estratégias para melhorar a comunicação e a literacia em saúde.

Downloads

Não há dados estatísticos.

Referências

1. iarc.who.int [Internet]. Lyon: International Agency for Research on Cancer; 2022 [cited 2024 dec 9] Available from: https://gco.iarc.who.int/media/globocan/factsheets/cancers/11-liver-and-intrahepatic-bile-ducts-fact-sheet.pdf

2. iarc.who.int [Internet]. Lyon: International Agency for Research on Cancer; 2022 [cited 2024 dec 9] Available from: https://gco.iarc.who.int/media/globocan/factsheets/cancers/13-pancreas-fact-sheet.pdf

3. iarc.who.int [Internet]. Lyon: International Agency for Research on Cancer; 2022 [cited 2024 dec 9] Available from: https://gco.iarc.who.int/tomorrow/en/dataviz/isotype

4. ine.pt [Internet]. Lisboa: Instituto Nacional de Estatística; 2022 [cited 2024 dec 9] Available from: https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_publicacoes&PUBLICACOESpub_boui=439489924&PUBLICACOESmodo=2

5. iarc.who.int [Internet]. Lyon: International Agency for Research on Cancer; 2022 [cited 2024 dec 9] Available from: https://gco.iarc.who.int/en

6. cancer.org [Internet]. American Cancer Society; 2025 Available from: https://www.cancer.org/cancer/types/liver-cancer/detection-diagnosis-staging/survival-rates.html

7. Hui D, Nooruddin Z, Didwaniya N, Dev R, De La Cruz M, Kim SH, et al. Concepts and definitions for “actively dying,”“end of life,”“terminally ill,”“terminal care,” and “transition of care”: a systematic review. Journal of pain and symptom management. 2014; 47(1), 77-89.

8. Herman JM, Kitchen H, Degboe A, Aldhouse NV, Trigg A, Hodgin M, et al. Exploring the patient experience of locally advanced or metastatic pancreatic cancer to inform patient-reported outcomes assessment. Quality of Life Research. 2019;28, 2929-2939.

9. Khan NN, Maharaj A, Evans S, Pilgrim C, Zalcberg J, Brown W, et al. qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer. BMC health services research. 2022;22(1), 213.

10. Meleis AI.Transitions Theory. In Smith M, Parker M, editors. Nursing Theories and Nursing Practice. 4ed. Philadelphia, PA: FA Davis Co; 2015.

11. Goldberg JI, Flynn JR, Baser RE, Nelson JE, Capezuti E., Schulman-Green D. Exploring the Relationship Between Health–Illness Transition Experiences and Distress Among Patients With Pancreatic Cancer. In Oncology nursing forum. 2023;50(5): 625.

12. Chochinov HM. The Platinum Rule: A New Standard for Person-Centered Care. J Palliat Med. 2022;25(6):854-856.

13. Neubauer BE, Witkop CT, Varpio L. How phenomenology can help us learn from the experiences of others. Perspectives on Medical Education. 2019;8(2):90-97.

14. Fortin MF. O processo de investigação: da concepção à realização. 5ed. Loures: Lusociência; 2009.

15. Van Manen M. Research lived experience: human science for an action sensitive pedagogy. New York: State University of New York Press; 1997.

16. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International journal for quality in health care. 2007;19(6), 349-357.

17. World Medical Association. World Medical Association Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Participants. JAMA. 2024;333 (1)

18. Swenne, J, Nissen, RD, Hansen, TF, Jensen, LH, Søndergaard, J, Stie, M. Lived experiences of life with newly diagnosed advanced cancer – a qualitative interview study. International Journal of Qualitative Studies on Health and Well-Being. 2025;20(1).

19. Meleis AI. Transitions theory: Middle range and situation specific theories in nursing research and practice. New York: Springer Publishing Company; 2010.

20. Chen M, Wu VS, Falk D, Cheatham C, Cullen J, Hoehn R. Patient navigation in cancer treatment: a systematic review. Current oncology reports. 2024;26(5), 504-537.

21. Chen P, Hou W, Li C, Liang Q, Ma L, Zhao X, Yi C. Lived experiences of patients with advanced pancreatic cancer on patient-reported outcomes (PROs) management: a qualitative phenomenological study in Southwest China. BMJ Open. 2025;15(1), 1-9.

22. Bibeau K, Jackson TD, Bachini M, Lindley A, Blanco F, LaFiura C, Ren H, Lindsey S. Diagnostic journey and life impact of cholangiocarcinoma: results from surveys of patient and caregiver experiences. Future Oncol. 2024;20(15):997-1012.

23. Backman K, Hentinen M. Model for the self‐care of home‐dwelling elderly. Journal of Advanced Nursing, 1999;30(3), 564-572.

24. Quinn PL, McAlearney AS, Eramo J, Chen S, Cloyd JM, Rush LJ, Ejaz A. Factors impacting informed decision-making for patients with pancreatic cancer: a qualitative study. Support Care Cancer. 2025;33(9):825.

25. Keij SM, Stiggelbout AM, Pieterse AH. Patient readiness for shared decision making about treatment: Conceptualisation and development of the ReadySDM. Health Expect. 2024;27(2).

26. Solberg M, Berg GV, Andreassen HK. Lost in the loop - a qualitative study on patient experiences of care in standardized cancer patient pathways. BMC Health Serv Res. 2023;23(1):1371.

27. Bergqvist J, Nordberg JH, Wode K, Sunde B, Fransson P, Bernhardson BM. Living With Advanced Pancreatic Cancer: Patients' Experiences of Daily Life. Psychooncology. 2025;34(9).

28. Timóteo C, Vitorino J, Ali AM, Laranjeira C. Legacy in End-of-Life Care: A Concept Analysis. Nurs. Rep. 2024;14(3):2385–2397.

29. Krikorian A, Maldonado C, Pastrana T. Patient's perspectives on the notion of a good death: a systematic review of the literature. Journal of pain and symptom management. 2020;59(1), 152-164.

30. Zulueta Egea M, Prieto‐Ursúa M, Bermejo Toro L, Palmar‐Santos AM. Dimensions of good palliative nursing care: Expert panel consensus and perceptions of palliative professionals. Journal of Clinical Nursing. 2023;32(13-14), 3746-3756.

Downloads

Publicado

26-08-2026

Como Citar

1.
Loureiro AR, Rodrigues A, Fernandes L, Sousa F, Nunes M do C, Nogueira C. Vivências da Pessoa com Cancro Hepatobiliopancreático: um estudo fenomenológico num hospital central. Onco.News [Internet]. 26 de agosto de 2026 [citado 26 de agosto de 2026];(53):e0313 . Disponível em: https://onco.news/index.php/journal/article/view/313

Edição

Secção

Artigos de Investigação

Artigos Similares

<< < 6 7 8 9 10 11 12 13 14 15 > >> 

Também poderá iniciar uma pesquisa avançada de similaridade para este artigo.