Partilha e Reutilização de Dados - Opiniões e Atitudes da Pessoa com Doença Oncológica: revisão narrativa
DOI:
https://doi.org/10.31877/on.2025.50.06Palavras-chave:
Dados em saúde, Partilha de dados, Opiniões e atitudes, OncologiaResumo
Objetivo: Identificar as opiniões e atitudes da pessoa com doença oncológica relativamente à partilha e reutilização de dados em saúde.
Método: Revisão narrativa através da pesquisa de artigos nas bases de dados MEDLINE (PubMed) e CINAHL (EBSCO). Foram ainda analisadas as listas de referências bibliográficas de cada artigo selecionado e realizada uma busca manual para incluir potenciais estudos adicionais.
Resultados/conclusões: De forma geral, as pessoas com cancro demonstraram uma grande disposição para partilhar os seus dados de saúde; apresentavam algumas preocupações, como a privacidade e segurança dos dados, discriminação ou a utilização indevida; eram menos propensos a partilhar dados com instituições governamentais e entidades comerciais; não consideraram necessária a renovação do consentimento para investigações futuras e gostariam de ser informados sobre os resultados mais importantes.
Conhecer estas atitudes e opiniões poderá contribuir para o debate público e político, bem como para o desenvolvimento de um quadro legislativo apropriado.
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Direitos de Autor (c) 2025 Sílvia Reis, Cátia Sofia Marques Teixeira
Este trabalho encontra-se publicado com a Licença Internacional Creative Commons Atribuição-NãoComercial-CompartilhaIgual 4.0.
